Laptops, Hacky-sacks and Soda Straws

Keeping this page going is like kicking a Hacky-Sack. As long as I keep busy and frequently add words and images I attract views and followers. Unfortunately there are times in my life now where writing is not quite – but almost as impossible as keeping a little leather packet full of rice in the air. I’ve made no secret of the fact that I deal with severe autoimmune problems, that between ankylosing spondylitis and rheumatoid arthritis the simple act of walking can sometimes defeat me.  What I haven’t been as open about  is the running gun battle I have with upper respiratory infections. It’s not unusual for me to have up to six cases of bronchitis a year; I’ll spend three weeks fighting the sickness only to get sick again only three weeks after I get better.  To put it bluntly I spend most of my time feeling like I am trying to breathe through a soda straw.

 Both the inflammatory diseases and respiratory problems stem from questionable medical practices of the mid-20th century.  I’m a thymus baby – as an infant I had an enlarged thymus which was thought to cause SIDS ( Sudden Infant Death Syndrome) The condition was called status thymicolymphaticus and while that is now an obsolete term it didn’t keep the doctors from removing that pesky gland with a series of hard x-ray treatments in 1953. The practice was discontinued not long after my treatment – a small comfort now that I’ve lived 64 years with a compromised immune system.

 It’s frustrating because I did everything right in terms of healthy living and I still ended up in the cross-hairs of a disease I didn’t even know about until I was almost fifty. It’s frustrating because I have a healthy dose of transpersonal commitment, a genuine desire to help those around me and other than call friends there’s not much I can do.

…so I write. I hope that I will some up with something that will bring insight, comfort or just a laugh to others. Unfortunately there are times when I can’t even do that (write) and I just have to hope that you’ll all hang around until I can get back to the keyboard.

 

 

3 thoughts on “Laptops, Hacky-sacks and Soda Straws

  1. After posting this last night my Beautiful Saxon Princess made the comment that I’ve been quoting different numbers when taking about my frequent URIs – so I checked with my pharmacy to see how many times I’ve been prescribed a Medrol dose pack in the last year. (It’s a steroid that most asthmatics know of only too well). Seven times since September of 2017. The year before it was prescribed half that many times. For once I really wish I’d been exaggerating.

  2. David, I’m glad you haven’t given up on the blog, and that you do persevere with writing, even if the cost seems high. I feel so sorry for your problems, and wish there was something I could offer other than helpless sympathy. Do what you can; take care of yourself.

  3. Thank you Frederick. I will definitely keep writing – my Beautiful Saxon Princess maintains that my health and disposition are much better when I’m word-crunching. Where I fall behind is in accomplishing all the many support tasks inherent in keeping a blog

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